When I started this blog, it was supposed to be about different topics that I felt were relevent to the lupus community. Unfortunately, after I dropped a dose of medication, my lupus (or something), decided to flare up. Truthfully, this blog IS relevant to the lupus community...it happens to us all. The feelings we go through, the flare ups we get out of no where, and the fear of the unknown are so common to lupus warriors everywhere.
I expected the few days of feeling miserable, and the resulting autonomic issues (fainting, tummy issues, extreme fatigue, muscle spasms...). What I did not expect was a strange pin-point rash on my lower back that is now spreading to my belly, burning/tingling in my scalp, and my throat to spasm along with more muscle spasms about a week later. I am not sure what is going on...I do not know if this is a result of all the physical stress my body has been under since I got my concussion about a month ago, and now that I am back down to my "normal" dose of prednisone my body is flaring.
I have a call into my rheumatologist to see if the bloodwork I did last week came back and shows SOMETHING. Maybe he will have some idea of what is happening. I really hope one of the medications I am on is not causing this reaction. I cannot afford to drop any more medications. The stress on my body would be way too much. I truly do not want to up my prednisone again, only to have to lower....again.
The unknown is the worst...I can handle what I know. When I have a plan of action, I can usually deal with it pretty well, but not knowing what is going on in my body is extremely frustrating!
One can only hope it isn't anything serious, and I will not have to do anything drastic. That is my only hope...
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